Mobilized: My Healthcare Story - Rights and Democracy VT

Mobilized: My Healthcare Story

MOBILIZED: From Glossophobic to ‘Healthcare Activist’

(My “Healthcare Story”)

By Brenda Patoine


If you had told me two weeks ago that I would be telling my “healthcare story” before a standing-room-only auditorium of 1,000+ people and then again to the policy wonk at my U.S. Congressman’s office, I’d have told you that you were nuts. As in, bonkers.

Public speaking, you see, makes me sweat. And possibly vomit.  Glossophobia, they call it. I just call it hell.

So you can imagine my response when a volunteer from RAD, Jessica Early, contacted me about speaking at the local rally in support of Sen. Bernie Sanders’ National Day of Action to Save Healthcare on  Jan. 15.  Thanks to my big fat facebook mouth, she had gotten wind of the fact that the only reason I have healthcare insurance today is because of the Affordable Care Act, and she wondered if I’d be willing to tell my story.  

How could she know the very idea would send my stomach churning?

Once I stopped retching, I was left scratching my head.  ”I don’t have a compelling healthcare story to tell,” I said.  I was genuinely perplexed.

I told Jessica, nicely, that she had the wrong person for the job, that she should find a single mom with a sick kid, or a nice old man in danger of losing his Medicare. Or a veteran facing cancer treatment. Now that’s compelling, right?

But me? I’m just a single, self-employed science writer who lost her health insurance when she divorced her husband. Not very compelling, right?

My ex worked in healthcare, and had reallllly good insurance. I’d been self-employed since 1989, and he had always had good employer-based health insurance, so I had never had to think about it. With the divorce, that all changed. It was going to cost me four or five hundred dollars a month to continue my coverage -- not financially feasible for me at the time -- so I let it go.  To be honest, I wasn’t particularly concerned about it. I’m fortunate to have good health. I’ve never had any significant health issues and I don’t get sick a lot, so I have never been a big “consumer” of healthcare services.

You know, the kind of person insurance companies love.

Despite my good health and underutilization of healthcare, I lived with this constant background anxiety around not having healthcare coverage.  There was this ever-present nagging notion that I was just one slip on the ice away from financial ruin.  You know what I mean?

So when the opportunity arose to get healthcare through the Affordable Care Act, I signed up -- somewhat begrudgingly.  Obamacare, as the Republicans had nicknamed it, was not perfect, by any means.  We all knew the insurance company lobbyists had practically written it to serve their own interests. That Big Pharma was still going to gouge us on drug prices. And then there was that penalty…ouch, did that hurt for people like me who were facing it as a reality.  


Still, it was something, right?  And something was better than nothing.

For me personally, the benefit was clear: the ACA meant the difference between not having healthcare and having healthcare.

Having health insurance didn’t drastically change my life. I didn’t suddenly start going to the doctor.  I wasn’t diagnosed with some life-threatening illness right afterward, as so many stories go. None of that drama applies.  What there was instead was just this subtle sense of pressure relieved, of anxietylessened.  There was the peace of mind that comes with the knowing that – should something happen -- I was “covered”.

So at some point during that phone conversation trying to convince Jessica that I was not her poster child for healthcare and get myself out of this sweat-inducing, stomach-churning public-speaking gig, it hit me: This isn’t about me. It struck me that that single mom with a sick kid? That’s my friend in Barre.  And that nice old man whose Medicare is threatened? That’s my Dad, my 89-year-old-dad on a fixed income in in the Northeast Kingdom.

No, this isn’t about me. And it’s not about you. Nope.

It’s about US. All of us. Each and every last one of us. The young mom working three part-time jobs without benefits to support her kids. The father who can’t retire because he can’t afford to lose health insurance for his family. The retiree who has to choose between her blood pressure medicine and groceries. The college grad with an entry-level job and no more parental safety net. The women who will be forced to pay more just because we are women.

And yes, the self-employed writers and artists and entrepreneurs who are on their own when it comes to health insurance. Like me.  

Sign me up, I said. Because if healthcare becomes something only the wealthiest can afford, that does NOT make America great. 

That’s why we fight.  That’s why we speak out.

Even if it makes us sweat.


Brenda Patoine, a South Burlington resident, is a self-employed science writer, reporter, blogger and photojournalist who has covered neuroscience research for more than 25 years.  She is a volunteer photographer for Rights & Democracy. She told her healthcare story at the Save Healthcare Rally at Burlington High School on Jan. 15, where more than 1,000 people crammed into the auditorium on a sunny Sunday afternoon to show support for the Affordable Care Act.  She also accompanied RAD staffers to Congressman Peter Welch’s office on Bernie Sanders’ second Day of Action around healthcare, to share her story with Outreach Representative Kevin Veller.  Public speaking still makes her sweat.


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